‘One of the hardest experiences of my life’

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By journalsofus.com


Celine Dion isn’t giving up as she battles her autoimmune disease.

The beloved singing icon, 55, took to Instagram to update fans about her health struggles on Friday, which also marked International Stiff Person Syndrome Awareness Day.

Dion – who has been suffering from the illness since 2022 – smiled in a photo with her three sons, 25-year-old René-Charles Angelil and 13-year-old twins Nelson and Eddie.

She shares her sons with her late husband René Angélil, who died in 2016.

Dion posed with her three sons, 25-year-old René-Charles Angélil and 13-year-old twins Nelson and Eddie. Instagram/@celinedian

He thanked his fans and family for supporting him amid his serious health crisis.

“Today the world recognizes International SPS Awareness Day,” the “My Heart Will Go On” singer wrote.

“Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I am determined to get back on the stage one day and live as normal a life as possible. I am extremely grateful to my children, family, team and all of you for your love and support.

The Canadian native said: “I want to send my encouragement and support to all the people around the world who have been affected by SPS. I want you to know that you can do it! We can do this!”

Her posts were also translated into French for her international fans.

The singer was diagnosed with Stiff Person Syndrome in the fall of 2022. AFP via Getty Images

According to RareDiseases.org, Stiff Person Syndrome is a “rare acquired neurological disorder characterized by progressive muscle stiffness (stiffness) and repeated episodes of painful muscle spasms.”

The pop icon was diagnosed with SPS in 2022 and revealed the news in a teary-eyed video at the time, also announcing that she would have to postpone her European tour. It was later canceled last year.

She said, “As you know I have always been an open book and I was not ready to say anything earlier but now I am ready.”

“I’ve been struggling with my health issues for a long time and it’s been really difficult for me to face my challenges and talk about everything I’ve been going through.”

In November 2023, Dion made her first public appearance in nearly four years when she attended a hockey game in Las Vegas.

The Canadian pop star made a surprise appearance at the Grammys last month. cbs

The game was between the Vegas Golden Knights and his hometown team, the Montreal Canadiens.

Meanwhile, the “Because You Loved Me” singer delighted fans after making a surprise appearance at this year’s Grammy Awards.

She came out to present the Album of the Year award to Taylor Swift for “Midnights” at the conclusion of the ceremony.

Dion said, “Those who have had the privilege of attending the Grammy Awards should never lose sight of the tremendous love and joy that music brings to our lives and to people around the world.”

“It gives me great pleasure to present the Grammy Award that two legends, Diana Ross and Sting, gave me 27 years ago,” he said with a smile.

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